Neurodiversity, Autism, & Mental Health: Stranded on Earth and having fun with it
Monday, October 27, 2014
Mechanical Metaphor
I'm surrounded by people I don't truly know, even if I "know" them. I want to connect, but I can't find people's brain-ports. I don't want to see their polite greeting program. I don't want their antivirus to block me. I want to know their system. I want to know what's in their documents and let them read mine, give them a taste of my music while I enjoy theirs, watch their videos and show them mine, and share files.
If only our operating systems were compatible......
Thursday, October 2, 2014
The Aspie Underneath
It's days like these that make me feel more like an alien. It's days like these that mess with my head, and cause me to stay in my room. I don't want to go out in public on these days. I shouldn't.
One day I'll be doing well socially and energy-wise, and another day I'd take a few thousand developmental steps backwards and become awkward again. It's not that I wouldn't have confidence to make conversation on these days, it's just that I know better not to. I'm aware that I may either talk too much or too little, or change the subject randomly, or insert humor excessively. My limbs might decide to have a mind of their own and move stiffly or awkwardly, maybe twitch a little. It'd be harder to look {>.>} at people, and I wouldn't know where to focus my gaze {o.o}. I'd be far too disoriented to know how to put on my mask of normality. (._.)
This is when having a roommate isn't as fun... luckily, my roommate is rather accepting, but I still have to try to keep a cap on my awkwardness so it doesn't explode in a way that would bug her. If I was by myself, I'd feel a bit freer to be myself (that crazy lady who talks to herself in different voices, makes animal noises and laughs a lot, and hums to herself whilst pacing about the room).
On these days, I'd rather just be alone.
One day I'll be doing well socially and energy-wise, and another day I'd take a few thousand developmental steps backwards and become awkward again. It's not that I wouldn't have confidence to make conversation on these days, it's just that I know better not to. I'm aware that I may either talk too much or too little, or change the subject randomly, or insert humor excessively. My limbs might decide to have a mind of their own and move stiffly or awkwardly, mayb
This is when having a roommate isn't as fun... luckily, my roommate is rather accepting, but I still have to try to keep a cap on my awkwardness so it doesn't explode in a way that would bug her. If I was by myself, I'd feel a bit freer to be myself (that crazy lady who talks to herself in different voices, makes animal noises and laughs a lot, and hums to herself whilst pacing about the room).
On these days, I'd rather just be alone.
Tuesday, September 16, 2014
Back to College: My Transition Anxiety Firsthand
JOURNAL SNIPPET (Before the Episode)
SATURDAY 8/23
Well, let's see... this is my first night moving into college. I go to Judson University. Me and my good friend Stormy decided to room together, and so far we're getting along just fine. Then again, it's been only a day. :P We're nearly all organized/unpacked.
I'm so tired right now. I ought to sleep. But I can't figure out what to write to help me not have transition anxiety. I think the fact that Stormy is here, plus my mind is off it, helps a lot. I've been okay all day. I also took my supplements this morning so that should have helped. Really, overall, things sorta went "according to plan," but anything that didn't I adapted to very easily. Oddly easily...
---
Recollection of Transition Anxiety Episode
On Sunday night, I fell asleep rather easily, but woke up feeling strangely disoriented. I felt weird and uneasy, and my body was twitching and I was making soft noises in response.
I had experienced this before. Transition Anxiety... or more specifically, the strange "episodes" I associate with it. Usually I'd feel a mixture of intense anxiety and anguish, and there would be a lot of crying. However, I had mastered that portion of the episodes (mostly out of the necessity to not make a ruckus), so all that showed up that night was the physical symptoms that tend occur as a result--or the "aftermath."
Now that I had a sleeping roommate, I couldn't allow myself to release that pent-up anxiety in a way that would wake her up. I had to find another way to cope.
I prepared myself for what I expected to be a night of misery.
I pulled out my phone and messaged James. He's a wonderful friend of mine who I only know through the internet (half of my friends are online ones), but he's very close to me because we've got a lot in common, and he accepts me and tries to help me through stuff like this. During the anxiety, I had a hard time putting words into coherent sentences, though.
Here are some snippets of the conversation:
"Lushia Kyobi: Out of body, limbs float woke up flipped around next to computer, disoriented movement involuntary, spasms involuntary"
James did his best to reassure me until I managed to get up and out of bed. I figured a quick trip to the bathroom should help.
After I got out of bed, something occurred that I can only describe as a sort of "out-of-body" experience. It felt like my soul was trying to float out of my body as my consciousness fluctuated, creating a mental motion blur.
After walking into the bathroom, a mental block kept me from leaving and going back to bed. I cannot even explain why, but the very idea of leaving the bathroom paralyzed me.
"Lushia Kyobi: Got up walked around scared into bathroom couldn't leave bathroom dark bad strange compulsion to stay worry"
"James Agbotta: <sitting outside your bathroom> its ok hmm? just relax"
I ate a small snack in case hunger was aggravating the anxiety symptoms. Sometimes I won't notice if I'm hungry when I'm overstimulated or anxious.
When I finally did force myself back in bed, I continued to talk to James, waiting for it to pass.
"Lushia Kyobi: Not in bathroom now forced body to walk into bed, binaural beats to calm because involuntary anxiety no control, only some, body tense. 'twas scary like possess"
"James Agbotta: maybe a hallucination? dream feeling real?"
"Lushia Kyobi: I don't know"
"Lushia Kyobi: Got food. Just followed basic instructions in deep mind, remembered water, food, binaural beats. Motor skills coming back some with some twitching but good"
The weeks before school I had disciplined my mind to take care of my body even when I was experiencing crippling anxiety. It was as if natural survival instincts took over. I'm sure glad that they did.
When the episode began, I expected the worst. Usually these situations last all night the first night of school.
But guess what?
It only lasted one hour.
It was a miserable hour for sure, but I conquered it. James did help me get through it, but it was ultimately my decision to actively seek my coping mechanisms that brought resolution.
For me... this was a huge success. :)
SATURDAY 8/23
Well, let's see... this is my first night moving into college. I go to Judson University. Me and my good friend Stormy decided to room together, and so far we're getting along just fine. Then again, it's been only a day. :P We're nearly all organized/unpacked.
I'm so tired right now. I ought to sleep. But I can't figure out what to write to help me not have transition anxiety. I think the fact that Stormy is here, plus my mind is off it, helps a lot. I've been okay all day. I also took my supplements this morning so that should have helped. Really, overall, things sorta went "according to plan," but anything that didn't I adapted to very easily. Oddly easily...
---
Recollection of Transition Anxiety Episode
On Sunday night, I fell asleep rather easily, but woke up feeling strangely disoriented. I felt weird and uneasy, and my body was twitching and I was making soft noises in response.
I had experienced this before. Transition Anxiety... or more specifically, the strange "episodes" I associate with it. Usually I'd feel a mixture of intense anxiety and anguish, and there would be a lot of crying. However, I had mastered that portion of the episodes (mostly out of the necessity to not make a ruckus), so all that showed up that night was the physical symptoms that tend occur as a result--or the "aftermath."
Now that I had a sleeping roommate, I couldn't allow myself to release that pent-up anxiety in a way that would wake her up. I had to find another way to cope.
I prepared myself for what I expected to be a night of misery.
I pulled out my phone and messaged James. He's a wonderful friend of mine who I only know through the internet (half of my friends are online ones), but he's very close to me because we've got a lot in common, and he accepts me and tries to help me through stuff like this. During the anxiety, I had a hard time putting words into coherent sentences, though.
Here are some snippets of the conversation:
"Lushia Kyobi: Out of body, limbs float woke up flipped around next to computer, disoriented movement involuntary, spasms involuntary"
James did his best to reassure me until I managed to get up and out of bed. I figured a quick trip to the bathroom should help.
After I got out of bed, something occurred that I can only describe as a sort of "out-of-body" experience. It felt like my soul was trying to float out of my body as my consciousness fluctuated, creating a mental motion blur.
![]() |
| Bad anxiety affects my coordination |
After walking into the bathroom, a mental block kept me from leaving and going back to bed. I cannot even explain why, but the very idea of leaving the bathroom paralyzed me.
![]() |
| A fairly accurate example of my visual glitches when I'm disoriented. |
"James Agbotta: <sitting outside your bathroom> its ok hmm? just relax"
I ate a small snack in case hunger was aggravating the anxiety symptoms. Sometimes I won't notice if I'm hungry when I'm overstimulated or anxious.
When I finally did force myself back in bed, I continued to talk to James, waiting for it to pass.
"Lushia Kyobi: Not in bathroom now forced body to walk into bed, binaural beats to calm because involuntary anxiety no control, only some, body tense. 'twas scary like possess"
"James Agbotta: maybe a hallucination? dream feeling real?"
"Lushia Kyobi: I don't know"
"Lushia Kyobi: Got food. Just followed basic instructions in deep mind, remembered water, food, binaural beats. Motor skills coming back some with some twitching but good"
The weeks before school I had disciplined my mind to take care of my body even when I was experiencing crippling anxiety. It was as if natural survival instincts took over. I'm sure glad that they did.
When the episode began, I expected the worst. Usually these situations last all night the first night of school.
But guess what?
It only lasted one hour.
It was a miserable hour for sure, but I conquered it. James did help me get through it, but it was ultimately my decision to actively seek my coping mechanisms that brought resolution.
For me... this was a huge success. :)
Tuesday, July 29, 2014
Accepting My Own Weirdness
Recently I've been experiencing a LOT of anxiety as the result of a number of things. There's the pressure to finish the video editing for my Asperger's Documentary before I go back to school, as well as the knowledge that I will have to get through another bout of transition anxiety when I do go back. So there's not much time to prepare.
However... today whilst running errands, I found myself feeling strangely happy. It took me a while to figure out the reason why; and turns out this reason was something that might seem minor and insignificant to most people. The reason: Something caught my eye at the craft store. It seems like an ordinary, everyday experience, but my recent anxiety and depression had pretty much killed my interest in most things. It was delightful... it was like a light, bouncy feeling, to be able to look at something I like and actually want it. I had to tell my frugality to take a long walk off a short plank so I could get this item for myself and actually enjoy the lovely feeling of getting something new that I wanted.
Yep. A pirate bandanna. It looks like one a kid might wear, but I liked it when I saw it, mostly due to my obsession with pirates as a teen. And the strangest thing occurred: it didn't bother me that I liked this item that "mature" people probably wouldn't wear. Honestly, I am so paranoid about what people think of me, and I work so hard on fitting in that I often deny myself things that others might not approve of.
But I bought the bandanna.
And I'm going to wear it. :D
Honestly, I think a lot of aspies have a hard time really accepting themselves and all of their quirks. Seems that they'd either love themselves to the point of it being a problem for others, or hate the way they are with a passion... it's hard to find a happy medium. Regretfully, I'm one of those who have been quietly submissive to the influence of society, so I've suppressed a lot of my aspie tendencies out of fear of being rejected.
But I am so tired of trying to be normal.
Haven't I learned already that normal is boring? When I'm at school, I don't make friends with those people. I make friends with those who are weird, nerdy, strange, and/or unique. The odd ones seem to have real personalities, while all the "normal" ones all seem the same to me.
(And in using the term "normal" I do recognize that there is no such thing, but I am referring to how the majority of people behave depending on where I am currently living. Basically those who go with the flow.)
I want to release what's been hidden, to be out there, to be... weird. I want to fight the norm. And I'm gonna do that to the best of my abilities.
...even if my form of protest is as harmless and as silly as wearing a pirate bandanna. :P
However... today whilst running errands, I found myself feeling strangely happy. It took me a while to figure out the reason why; and turns out this reason was something that might seem minor and insignificant to most people. The reason: Something caught my eye at the craft store. It seems like an ordinary, everyday experience, but my recent anxiety and depression had pretty much killed my interest in most things. It was delightful... it was like a light, bouncy feeling, to be able to look at something I like and actually want it. I had to tell my frugality to take a long walk off a short plank so I could get this item for myself and actually enjoy the lovely feeling of getting something new that I wanted.
![]() |
| It's a pirate bandanna. |
But I bought the bandanna.
And I'm going to wear it. :D
Honestly, I think a lot of aspies have a hard time really accepting themselves and all of their quirks. Seems that they'd either love themselves to the point of it being a problem for others, or hate the way they are with a passion... it's hard to find a happy medium. Regretfully, I'm one of those who have been quietly submissive to the influence of society, so I've suppressed a lot of my aspie tendencies out of fear of being rejected.
But I am so tired of trying to be normal.
Haven't I learned already that normal is boring? When I'm at school, I don't make friends with those people. I make friends with those who are weird, nerdy, strange, and/or unique. The odd ones seem to have real personalities, while all the "normal" ones all seem the same to me.
(And in using the term "normal" I do recognize that there is no such thing, but I am referring to how the majority of people behave depending on where I am currently living. Basically those who go with the flow.)
I want to release what's been hidden, to be out there, to be... weird. I want to fight the norm. And I'm gonna do that to the best of my abilities.
...even if my form of protest is as harmless and as silly as wearing a pirate bandanna. :P
Sunday, July 20, 2014
Complexity Overload - OCD Tendencies and Too Many Details
I know that the aspie brain has the advantage of being
detail-oriented, but it becomes VERY difficult for me when there is too much
information to process! I experience some OCD symptoms and intrusive thoughts,
which are intensified by living in an uncontrollable environment, dealing with
transitions, or adjusting to a new schedule.
Keepin’ It Neat = An Impossible Feat
For the most part, I tune out my surroundings fairly easily
so my brain doesn’t fry. It’s as if all the things in the house that aren’t
mine (or things I don’t bother with) are in grey as if they are “Inactive,”
while my belongings (and anything else I use) are in color as if they are “Active.”
Recently my family went on vacation while I insisted on
staying home to catch up on my film editing. I also loved the idea of having
the whole house to myself for nearly 12 days. I always feel somewhat held back
when people are around for some reason, even if it’s my own family. After the
first day, I realized something: nothing in the house would be moved or change.
Not a single, tiny thing. Every object would stay in one place unless I moved
it.
That’s when I let my OCD organizing side go wild on the
house.
I cleaned off counters, drawers, cabinets, etc. and labeled a bunch of
things, since it had previously helped my family keep everything at least
somewhat organized. I tried not to label EVERYTHING so I wouldn't seem too
obsessive. I mostly labeled the places that had been the most disorganized, and
any particular areas of the house that were strictly for my stuff. For 12 whole
days, the house was completely in color for me. Every object was “active,” and my awareness, productivity, and processing speed were greatly increased! It’s
as if I had gained superpowers, and the level of my existing abilities was
doubled. And it was soooo nice to have that consistency in the house, even
though it wasn't for very long.



Once my family came home, I showed them all the new labels
so they’d be aware of them. It’s amazing how easily a lot of NT’s can overlook
stuff like that if you don’t point it out (no offense to NT’s, obviously there
are social things that need to be pointed out to aspies to make up for it). The
places I labeled are stayed fairly neat for a while, but everywhere else was free
game for messes and chaos.
This caused my brain to overload big time. Since the whole
house was still “active” in my mind, I would notice absolutely everything. If an object was moved
somewhere else, I’d feel compelled to put it where it belonged. It quickly
became apparent that I could not keep up with this, and that it wasn't practical to give in to
my compulsions to put every single object in its place. So I allowed my brain
to transition back to leaving the house alone, to forfeit mental “ownership” of
the house and all that it contains. My brain didn't like this. The OCD
tendencies had to be released somehow, so it came out in me googling anything
and everything that came to mind when I had a free moment, and processing
thoughts over and over and over, while analyzing the complexities of certain
situations.
The analyzing was the worst, because I would see nearly every detail and every possibility in each situation.
And what I pondered always
varied, from conflicts in religious beliefs, symptoms of particular ailments,
why criminals commit crimes, one perspective vs. another, etc. I would also
analyze my own thoughts, which often would go in circles again and again, and
it would drive me insane… then I would wonder what the heck is wrong with me,
and negativity would enter that endless cycle.
One good thing (yet also bad in some cases) is that I can
still function enough to get things done in this state, even if it’s a little
slower or not as thorough. In fact, I seem so normal during these times that no
one notices. It’s as if my body is on autopilot, doing all the things I’ve
trained it to do, while my mind detaches to wander off in other
dimensions.
Thursday, June 26, 2014
Rant With Purpose: Aspie Routines ~ Why I Like School
I really enjoy going to college.
And not just because I get to learn neat stuff.
A major reason is because it gives me a routine.
I live in the campus dorms during the school year, and typically I get a room to myself due to my Asperger's Syndrome. This gives me complete control of my surroundings, and no one would be taking me by surprise by entering the room. But that's not the only thing that helps me... another major element of college that keeps me sane is... the syllabus. Whoever invented it must have had the mind of an aspie.
On top of that, I get a meal plan with my room-and-board expenses. So I don't have to worry about starving to death if I'm too overwhelmed to cook.
But seriously, the routine. I would have classes at the same times on the same days, and the homework is all nice and laid out on the syllabus. Do you have any idea how awesome that is???
If you don't know why I think it's awesome, allow me to explain.
People with Asperger's thrive when they have a routine and things are in order. This is due to the way the aspie brain is wired.
It takes a lot more energy to process information and external stimuli, so we can become easily overwhelmed with the world, and feel as though we have a lack of control. But with a routine, we at least have control over something. We need constants, repetition, and familiarity to feel secure. We can't just "go with the flow." It takes too much time and effort to adjust.
The reason why I am posting this is because I'm currently frustrated with living at home. Don't get me wrong, I have an awesome family, a nice house, and it's usually pretty quiet around here. But there are a few "minor" factors that can cause me to mentally "flee," or send my brain spiraling into depression and confusion.
1. Despite any routine I set, there are rarely any constants.
Yes, I have taken every day of the week into consideration. I know I have chores on Saturdays, church on Sundays, etc. But even after I've added all that into my routine, things still pop up. Things like appointments and unexpected responsibilities. I want to be able to deal with these like a normal person but I can't! Sure, when a family member asks for a favor I'd do it, like a decent human being. But it's at the cost of all my plans and sanity for the day, because by the time my brain re-schedules the things I'm behind on, the day is over!!!
2. I'm never guaranteed to have solitude at particular times.
Everyone else's schedules vary, so family members would be in and out of the house at random. They don't cause any trouble for me or anything, so I try not to let it bug me. But I can really only be myself in solitude, and if I don't know when I'm getting it, I have to wear my NT mask 24/7. It's definitely not good for my brain. I mean, I can pull it off, but at the expense of my at-home tasks...? They need to get done at some point...
I'm sure there are a few other factors, but that's all I can think of for now.
As a result of these, my motivation to do anything tends to be snuffed out easily. Even the things I enjoy aren't very enjoyable when I'm here. I'm lucky if I get the urge to play a particular video game, even. And even if I try to follow through with that and play that game... someone could be using the TV. So it's just not worth it, seeking anything enjoyable.
Normally I try not to rant online when I feel like this. But I'm so sick of keeping it to myself. So there. I figured people would want to know the bad stuff, and not just the good stuff related to having Asperger's.
And not just because I get to learn neat stuff.
A major reason is because it gives me a routine.
I live in the campus dorms during the school year, and typically I get a room to myself due to my Asperger's Syndrome. This gives me complete control of my surroundings, and no one would be taking me by surprise by entering the room. But that's not the only thing that helps me... another major element of college that keeps me sane is... the syllabus. Whoever invented it must have had the mind of an aspie.
On top of that, I get a meal plan with my room-and-board expenses. So I don't have to worry about starving to death if I'm too overwhelmed to cook.
But seriously, the routine. I would have classes at the same times on the same days, and the homework is all nice and laid out on the syllabus. Do you have any idea how awesome that is???
If you don't know why I think it's awesome, allow me to explain.
People with Asperger's thrive when they have a routine and things are in order. This is due to the way the aspie brain is wired.
It takes a lot more energy to process information and external stimuli, so we can become easily overwhelmed with the world, and feel as though we have a lack of control. But with a routine, we at least have control over something. We need constants, repetition, and familiarity to feel secure. We can't just "go with the flow." It takes too much time and effort to adjust.
The reason why I am posting this is because I'm currently frustrated with living at home. Don't get me wrong, I have an awesome family, a nice house, and it's usually pretty quiet around here. But there are a few "minor" factors that can cause me to mentally "flee," or send my brain spiraling into depression and confusion.
1. Despite any routine I set, there are rarely any constants.
Yes, I have taken every day of the week into consideration. I know I have chores on Saturdays, church on Sundays, etc. But even after I've added all that into my routine, things still pop up. Things like appointments and unexpected responsibilities. I want to be able to deal with these like a normal person but I can't! Sure, when a family member asks for a favor I'd do it, like a decent human being. But it's at the cost of all my plans and sanity for the day, because by the time my brain re-schedules the things I'm behind on, the day is over!!!
2. I'm never guaranteed to have solitude at particular times.
Everyone else's schedules vary, so family members would be in and out of the house at random. They don't cause any trouble for me or anything, so I try not to let it bug me. But I can really only be myself in solitude, and if I don't know when I'm getting it, I have to wear my NT mask 24/7. It's definitely not good for my brain. I mean, I can pull it off, but at the expense of my at-home tasks...? They need to get done at some point...
I'm sure there are a few other factors, but that's all I can think of for now.
As a result of these, my motivation to do anything tends to be snuffed out easily. Even the things I enjoy aren't very enjoyable when I'm here. I'm lucky if I get the urge to play a particular video game, even. And even if I try to follow through with that and play that game... someone could be using the TV. So it's just not worth it, seeking anything enjoyable.
Normally I try not to rant online when I feel like this. But I'm so sick of keeping it to myself. So there. I figured people would want to know the bad stuff, and not just the good stuff related to having Asperger's.
Thursday, April 10, 2014
I'm Not Making Excuses
One of my biggest issues with my limitations is
how I have to make others aware of them sometimes—usually it's professors,
employers, or anyone who may encounter my deficits at some point. I often feel
like I'm making excuses, even though I'm not... and I talk a bit more about it
in this video.
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